tag:blogger.com,1999:blog-600965522189705793.post7109737028306240300..comments2023-10-02T04:22:07.670-07:00Comments on Tami's Eclectic Corner: It's Official...Tami's Eclectic Cornerhttp://www.blogger.com/profile/10175829783434367249noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-600965522189705793.post-82764039456032155312009-02-24T09:55:00.000-08:002009-02-24T09:55:00.000-08:00Hmmm... that link didn't come out very well. I'll ...Hmmm... that link didn't come out very well. I'll email it to you.Kelhttps://www.blogger.com/profile/08695009933035671029noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-58987671614586464042009-02-24T09:54:00.000-08:002009-02-24T09:54:00.000-08:00Hello Tami! Nice to "meet" you, and I'm glad you f...Hello Tami! Nice to "meet" you, and I'm glad you found our family blog. You are always welcome to read it.<BR/><BR/>My family will soon be participating in a Hirschsprung study by Johns Hopkins University. If you're intersted, there is information here: http://www.hopkinsmedicine.org/geneticmedicine/CR/Hirschsprung/HomeHirschsprung.html<BR/><BR/>I found out about the study from my new friend in Israel whose infant son had a total colon HD baby like ours. He is the only other infant on earth that I have found is long-segment like our little one. I haven't found any other long-segment baby girls.<BR/><BR/>The most interesting part on that site, I think, is the section on inheritence, especially the percent risk to relatives. Like you, we were told initially that the chance for us having a second child with HD was minimal to zero. However, since we have a girl with LSHD, our chances increase substantially. I hope to have more kids someday, so hopefully we'll be more prepared if it does happen.<BR/><BR/>I'm sorry you're dealing with this again. Hope we can support each other through it all.Kelhttps://www.blogger.com/profile/08695009933035671029noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-74375472866281823692009-02-18T09:57:00.000-08:002009-02-18T09:57:00.000-08:00Our thoughts and prayers will be with you and your...Our thoughts and prayers will be with you and your family. You are a trooper and so is Carter.Jenhttps://www.blogger.com/profile/11776433342079513417noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-66843967003290039482009-02-17T18:51:00.000-08:002009-02-17T18:51:00.000-08:00Just wanted to check in and see how things are goi...Just wanted to check in and see how things are going, Tami, and to let you know that we're still thinking about you guys and praying for you, too. Good luck!Shafferprincesshttps://www.blogger.com/profile/07319738363152525190noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-35126484222862172322009-02-17T08:37:00.000-08:002009-02-17T08:37:00.000-08:00I have a friend whose son has HD. I talked to her...I have a friend whose son has HD. I talked to her often about his treatment and progression. I hope this long road will lead to comfort and health for your little guy.Jillhttps://www.blogger.com/profile/12326152096726080423noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-9130632771061167572009-02-15T20:29:00.000-08:002009-02-15T20:29:00.000-08:00Will ne be at Primary Childrens? My niece is a nur...Will ne be at Primary Childrens? My niece is a nurse, I will tell her to watch for you, she is GREAT. You'll love her, if you are going there. I am so glad that things are looking better. We miss seeing you. Good Luck with this coming week.Lauralee Brewertonhttps://www.blogger.com/profile/10832293308764441379noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-52947313638263710202009-02-14T09:27:00.000-08:002009-02-14T09:27:00.000-08:00you already return the love and support a 100 fold...you already return the love and support a 100 fold times ten.. You are adorable.. And I am glad there will be a light at the end of the tunnel for Carter.. YOu are amazing I adore you & look up to you so much.. Take CareHeidihttps://www.blogger.com/profile/11103299069151354822noreply@blogger.comtag:blogger.com,1999:blog-600965522189705793.post-3892375920579324692009-02-13T13:14:00.000-08:002009-02-13T13:14:00.000-08:00Wow, Tami! I just read online about a colostomy -...Wow, Tami! I just read online about a colostomy - I've never heard of that before. That's crazy that both of your boys have HD. I know we don't live close, but if there is anything I can do to help, please let me know. I'd be happy to. Good luck!Shafferprincesshttps://www.blogger.com/profile/07319738363152525190noreply@blogger.com